If your father’s care needs are now beyond the legal remit of the local authority (LA), the LA is now acting illegally in continuing to retain responsibility for his care. Full-time service We’ll provide a dedicated team of carers who can respond to all of a client’s particular needs, including: Thank you for your reply Angela..You have been a great help…Julia.. Making the decision about moving back home may require a Best Interests meeting if your wife no longer has the mental capacity to make that decision. Live-in care for couples costs only a fraction more than 24-hour care for one person, and there are a number of funding options available to aid in covering the cost. Any help would be appreciated as we are desperate. It is my understanding that if you are approved to be fully funded by NHS, that ALL care (health and social care) needs will be covered by NHS. NHS forced to find beds at care homes as hospital wards fill up ... Care home residents are set to begin receiving vaccinations this week. Do the nhs have a guideline for how long a person should have to wait for a care package!? Most people do prefer to age in place, rather than lose their independence, sense of control, and overall quality of life. The National Framework guidelines reinforce the point about the care setting: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213137/National-Framework-for-NHS-CHC-NHS-FNC-Nov-2012.pdf I don’t know the details of your case, of course, but if you are only given 3 hours care per day – and yet most care homes in the area can’t care for your husband even when that’s full time – there would seem to be a massive risk and a huge potential for neglect just having 3 hours, and of course there may well be a safeguarding issue here. And that they also do not recognise that the added pressure will make other halves and partners ill by not being able to cope. The jounalist writing it said she paid £700 per month and the local authority pay £900 per month for her mother's dementia care. Live-in care costs start at around £650 to £800 per week while 24-hour home care can be up to £2,000 a week. 2100 characters max. This is the initial stage of the Continuing Healthcare assessment process. If they don’t, or if you don’t yet have a provider, give CareAbout a call on 1300 036 028 . 24 hour care at home is a good idea because it generally costs less, is less stressful for your loved one, and the care is specialised to your loved one's individual needs. We did help where she would let us. Thanks you for your very kind words, Dawn. The DST acknowledges that he needs 2 carers for transfers, continence care etc. We asked if we could get direct payments because we were providing the majority of care anyway buy they said it is only awarded in extreme cases. Read further information on choosing the right care locally to support your healthcare needs. 24-hour daily home care avoids the emotional strain that can come from moving to a facility, away from the familiarity and comfort of one’s own home. A clear assessment of their overnight routine goes a long way towards minimising disruption and puts your loved one … Thank you. Following a very stressful assesment process,  for my son who lives in supported living , we now discover that potentially he is at risk of being moved into a care home due to the CCG’s local policy, which we were unaware of until after the award ( found by chance on the internet), the local policy states: XXX CCG will only consider the provision of  ‘care at home’ where the total cost of providing care is within 10% of the indicative budget. Where do I go next to get through or get this sorted? Then the assessor put forward to the panel a home care package of 2 carers 5 times a day (I’ve not heard of 5 visits before) & this was turned down because of the care home insisting on the 2-hourly repositioning. My parents also have their own health issues as do I and there is nobody else to look after him full time and my parents just can’t cope with him anymore, so a decision has been made reluctantly to put him into residence care home. They have said that they will pay the full cost of nursing care in a nursing home, but mum wants to go home. Also, if, in the unlikely event that it was agreed for him to remain at home and receive 24 hour care, we would have to accept staff from a nursing agency and could not use the services of the team of PA’s my father knows and trusts. The number of coronavirus cases at the Inchmarlo Care Home in Banchory rises from 44 to 72 in 24 hours. It would be worth you looking at the criteria on the Checklist document. However, there are three vital points to keep in mind here: 1) It is only a joint funding package if the paperwork says it’s a joint finding package;. 2 carers 4 x half hour visits to change pad and reposition him (he’s 74 no capacity-very vocal! CQC Rated 5*. Before this takes place the Continuing Healthcare dept at the local NHS (Clinical Commissioning Group) should give you information about the process and give you notice of when the first stage will happen. Lorraine if they have fast tracked your mum and it was accepted the district nurses need to contact the palliative care centre and request night sitters. It was always mum’s wish that she is looked after in her own home & she expressed this in her POA (I’m her sole attorney). I have asked the CHC for to up the care package to 24/7 as Mum is absolutely on her knees providing care for Dad every single hour that the carers are not there. It gives you a firm understanding of the process and lots of useful and practical information. You may also decide to contact the press and/or your MP. NHS funding is available regardless of the place in which your wife’s care is provided – it could be a nursing home, a residential home, a person’s own home, etc. Our 24-hour live-in care service is frequently used by the NHS. Any advice would be great fully received The model. This mean an approximate 24-hour live-in care cost in the UK of around £120-150/day. This specialized form of hospice care is designed to relieve family members when a patient is in need of care but does not receive 24-hour services in the home or during an inpatient stay. Hi CHPPD data gives ward managers, nurse leaders and hospital chiefs a picture of how staff are deployed and how productively. There is a wide array of reasons 24-hour care is needed, but one thing is for sure: the right care can maximize time spent with family and minimize stress. Because the money is stacking up and they want it back. a care home), but the actual Continuing Healthcare funding should cover all his assessed care needs, whatever degree is needed, and it covers care in any setting. Following this assessment Social Services said they would fund £250.00 per week towards her care however they recommended a Decision Support Tool (DST) and said they would wait for that outcome first. Mum does talk to us but not many people understand what she say’s, she wants to go home, but the social workers say its not possible as there is nobody at home to look after her, but we think she is giving up as she is not happy where she is. (she died before she could be discharged). This may help to start with: http://caretobedifferent.co.uk/continuing-healthcare-funding-and-choice-of-care-home/. My 77 yr old mum isn’t a nurse?! They called them weekly to arrange visits per week, so have their lists of suppliers. All comments are moderated in line with our Acceptable Use Policy and our Terms of Website Use. Care Homes provide care 24 hours a day and the fees range from £875.00 per week, depending on the region of the UK. The hospital told us she wouldnt be eligible so we discovered tips on your website and we insisted on delaying the discharge until the case we created on our own was put to panel, which it was and she became fully funded on the Chc. It is very distressing for both of them being apart. If your father moves county, his CHC funding should stay with him. If it is for any reason inappropriate or unsafe for him to have that degree of care at home, then you may have to consider other options (e.g. This is a crazy system and has been so stressful today that I have nearly had a breakdown! 2) If your mum is eligible for ‘some’ CHC funding, the question to ask is why are they not funding ALL her care, given that CHC covers both heath AND social care needs. This is a requirement under the Care Act, and no one should start paying care fees until this has been completed and a CHC funding decision made. Lizzi – I can certainly understand your concern. She also only got 4 pads a day even though she needed more and they would npt provide the bed mats we also had to purchase. This CCG only grants 4 per day etc etc and so we can’t apply unless we have a safe care plan to apply for and so on and so forth. You may want to carry on living at home but visit a hospice during the day for the care and support you need. Not an easy situation, Miles. If the NHS leaves someone without the full care they need, they are effectively putting the person at risk of injury and neglect. We also provide the 24 hour supervision and do extra toileting trips in the day. My mother has come to live with us after the care home said they could not cope with her. If your father was sent home without a full and appropriate care package and care plan, the NHS could be considered negligent in that respect. Families members should not be expected to provided the actual care needed. Guidelines state they’ll attempt to make it easier in this situation so it must crop up often that someone passes from social care to CHC. I have heard nothing since – just under 10 months ago now. This means they can support you up to twice each night so they also get enough rest to continue supporting you the following day. You could also report any care home that tries to get your father to pay unnecessary (illegal) fees. After the CHC assessor had done mum’s review she asked if anyone had mentioned a live-in carer to me & I said it had been mentioned briefly once but not in any detail. Could her CHC funding be transferred to a 24 hour live in package, and if so how do we go about arranging this? If you have 24 hour care from a live in carer, he or she stays in your home and will be available to support you overnight as well. She has 2 hr care a day. If not, is there another way I could get mum home? Maybe others with similar experience to you will chip in. Care at home or home instead care is an ideal way to avoid moving to a care home. Going into a hospice for 1 or 2 days a week means you will be able to access more services than if you received care at home. We went to an Multidisciplinary Team (MDT) review meeting which turned out to be a discharge planning meeting. She has lot of falls so now I have to take her to toilet and wash , bathe her and dress her. You may find there is more flexibility with a Personal Health Budget. This could include home adaptations, such as hand rails. Surely needing to be repositioned 2-hourly or having a pressure sore aren’t reasons to keep someone in a care home? My 93 year old Aunt paid for Home Care of about 2-3 hours per day. He has also been recommended to have a wet room installed as he hasn`t been able to shower since Oct. 2018. They say he will be eligible for chc but have not done a checklist or assessment they say the home will do it as they don’t . A primary caregiver who works 4-5 days of the week and a secondary caregiver who fills in the remainder of the week. NHS 24 is Scotland's national telehealth and telecare organisation. We have asked for my Dad to be assessed for NHS Continuing Healthcare whist he is in hospital. It is arranged and funded by the NHS. She is receiving CHC funding for carers except at night which the family are currently covering, but who work full time. What a great programme BBC2’s Hospital is, shining a light on our amazing healthcare with dedicated staff working in challenging conditions. Your email address will not be published. A Mental Capacity assessment will indicate his capacity in this respect: http://caretobedifferent.co.uk/mental-capacity-assessments/ (Keep in mind that mental capacity relates to a specific decision that needs to be made about something, not a general assessment of cognitive ability.) One of the questions from the CHC team was had I considered that I might need to apply to the court of justice for a “deprivation of liberty order” due to my mum having 24hr supervision. However, what I found interesting was that they refused my budget the first time due to a request for payment of £45 a week for private physio to enable my mum to attempt to walk, aided with a frame, due to their arguement that physio was available on the NHS (Despite a 12 month waiting list). I am just being passed from pillar to post. The #1 agency in respectfull & expert services specialing in live in care, elderly care & 24 hour care at home in UK. If not, you may be able to apply for a deputyship order. Thanks , Deb. For those who need around-the-clock care, a long-term care facility is not the only option. It’s an excellent solution for people who might otherwise have a lengthier than necessary stay in hospital as it can be used to support a patient’s reablement. I’ve mentioned this to the CHC assessor but he doesn’t seem that interested. She misses her neighbours and dog terribly. You may also need specialist care from community palliative care nurses who visit you at home to: They can also involve other specialist professionals in your care, if their expertise is needed. Continuing Healthcare funding and choice of care provider/care home. NHS England’s lead for the Hospital to Home programme looks at how the NHS Long Term Plan has provided, for the first time, a realistic model to support older people with long term conditions or complex health needs at home and in their own community:. Yes, if your husband meets the criteria for Continuing Healthcare then the NHS should cover all assessed care needs – and these do not need to be topped up by the family. I am very unhappy with my mum being in a Nursing home – more importantly she is very unhappy living there. By clicking Subscribe you also confirm you have read and accepted our Privacy Notice. Our mum is 98. My service user needs 24/7 2:1 support which is provided by 2 staff when family are at work and 1 staff + family member all other times. Should Social Services be paying toward her care? In November 2015 the hospital started planning for his discharge and at this stage I insisted that a Decision Support Tool (DST) be completed for my father. 24-Hour Care – Home v. HOWEVER, they will only offer 4 calls per day and because of that they said they couldn’t discharge her as the calls weren’t enough! Head your letter ‘Serious safeguarding alert’ and mark it urgent. In June my father had a fall at home and broke his leg and had a serious bang on the head. In which case moving to a care home could be more cost effective, unless care is needed for you and a partner or spouse, in which case it can work out cheaper as many providers just charge a supplementary charge for a second person rather than doubling the cost. Hi Ruth – yes you are entitled to request a CHC assessment at any time and if he is found eligible then the NHS pay rather than the Local Authority. Page last reviewed: 20 June 2018 He has Parkinsons and cannot stand or walk. Book A Consultation. Find out about the support available for carers. My husband receives CHC funding. preparing meals and drinks. Many say that only a certain number of hours per week will be provided, instead of full time care. The Professor at the hospital said he would back us all the way, feeling very stressed, I can’t understand how they can assess him, when they don’t even meet the person that are asking for the funding. I am in an awful predicament. The information I have gathered from this site suggests that both of these scenario’s are false and that I could expect funding for him to remain at home and to be cared for by carers of his/our choice (we do have LPAs in place). I’ve just discovered that NHS Continuing Healthcare (CHC) at home also covers “any household costs directly related to care needs” & would like some advice on the costs that are covered by this, & how I should proceed with claiming these costs. No matter where the care is provided, NHS Continuing Healthcare must cover ALL assessed care needs; there’s no cap on NHS care in this respect. 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